Telling Your Employer
The decision over whether to tell your employer could have an impact on your work. It may ensure more support or, in some cases, unfairly affect your career prospects. The legal requirements in relation to disclosure vary from country to country and you should check with your National MS Society.
The International Federation of Multiple Sclerosis Societies (IFMSS) is concerned that employers do not have adequate understanding of MS and may react inappropriately due to ignorance. To assess the situation and produce materials to guide employers, the IFMSS has set up the Working Together Initiative. Some of the advantages and disadvantages of telling your employer are given below.
Advantages of disclosure
• Telling your employers of your diagnosis can bring peace of mind. Many people with MS report that 'hiding is more stressful than telling'. Disclosure also makes it easier, if the need arises, to discuss any workplace adaptations that might be necessary.
• Having 'cleared the air', you will have an understanding of others' reaction to the fact that you have MS and of how you are likely to be perceived and treated by colleagues. You will be able to deal far more honestly with people.
• You will be released from the worry that a past employer or reference might inadvertently reveal the fact that you have a disability.
• Your apprehension about any proposed medical examination will be reduced, because you will know that the employer, insurance company and other relevant parties are aware of your MS before the examination.
• Having told your employer that you have MS, you would find it much easier to educate him/her and colleagues regarding the true nature of the disease. As well, this allows you to discuss with your employer any future changes in your condition.
Disadvantages of disclosure
• Fear of being discriminated against because of having MS, e.g. being denied promotion, training etc.
• Fear of reaction of colleagues and others.
• Fear of losing your job or not being offered a job (particularly if it has happened to you before).
• Fear that, if something goes wrong in your job, it will be blamed on your disability.
